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National Database for Autism Research
The National Database for Autism Research (NDAR) is a secure research data repository promoting scientific data sharing and collaboration among autism spectrum disorder (ASD) investigators. The project was launched in 2006 as a joint effort between five institutes and centers at the National Institutes of Health (NIH): the National Institute of Mental Health (NIMH), the National Institute of Child Health and Human Development (NICHD), the National Institute of Neurological Disorders and Stroke (NINDS), the National Institute of Environmental Health Sciences (NIEHS), and the Center for Information Technology (CIT). The goal of NDAR is to provide a shared common platform for data collection, retrieval, and archiving to accelerate the advancement of research on autism spectrum disorders. The largest repository of its kind, NDAR makes available data at all levels of biological and behavioral organization for all data types. As of November 2013, data from over 90,000 research participants are available to qualified investigators through the NDAR portal. Summary information about the available data is accessible through the NDAR public website.
== Background ==
In response to the heightened societal concern over ASD, the United States Congress passed the Combating Autism Act (CAA) of 2006 (P.L. 109-416).〔("Cure Autism Now and Autism Speaks Applaud Approval of the Combating Autism Act by United States House of Representatives" ), Autism Speaks, December 6, 2006〕 Through this Act, Congress intended to rapidly increase and improve coordination of scientific discovery in ASD research. The CAA mandated the creation of the Interagency Autism Coordinating Committee (IACC), a federal government advisory panel charged with developing and annually updating a Strategic Plan for ASD research. This plan provides a blueprint for autism research that is advisory to Congress, the Department of Health and Human Services, and other federal agencies on the needs and opportunities for autism research. The IACC Strategic Plan was designed to detail research opportunities centered on the six most pressing questions facing those affected by autism and links them to specific research efforts. In 2009, the plan was finalized and submitted to the Secretary of the Department of Health and Human Services; a seventh question related to infrastructure and surveillance needs was added to the plan in 2010.
NDAR was developed by the NIH with the goal of improving sample sizes and enabling researchers to share data for increased analyses. NDAR was already in the process of being developed when the seventh question of the IACC Strategic Plan was added. Question 7, Objective H〔(Question 7, Objective H of the IACC Strategic Plan )〕 of the IACC Strategic Plan emphasizes the creation of mechanisms to specifically support the contribution of data into NDAR from 90 percent of newly initiated projects regardless of funding source, and the linking of NDAR with other existing data resources by 2012.
抄文引用元・出典: フリー百科事典『 ウィキペディア（Wikipedia）』
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